Madeline Spencer Madeline Spencer

Keep Christmas Inclusive!

Image of woman with white hair and festive glasses hugging child with festive sparkly glasses. Both are smiling and laughing.

Image of woman with white hair and festive glasses hugging child with festive sparkly glasses. Both are smiling and laughing.

The holidays are here, bring on the customs and traditions, and time with family!

Vision loss can feel like the great divide in families, and no matter the age of your loved one with vision loss, you might feel at a loss on how to include them in all the festivities.

But how can you include Grandma in baking cookies if she can’t see? Why would Grandpa enjoy settling in to watch your traditional holiday movie if he can’t see it anymore?

There are always ways to include people. Maybe Grandma can help with baking cookies by mixing the dough, or prepping the ingredients! In our house our Grandma who has vision loss prepares, bakes, cools and divvies up the cookies. We just eat them!

What about Grandpa who used to enjoy sitting on the sofa and watching a holiday movie? If you’re streaming movies you can check out the closed captioning options- sometimes there is the option of Audio Described. This replaces the original audio to include movement and details in the film that you would miss if you couldn’t see it. You might learn more about your beloved movie by adding description!

Don’t halt your traditions when family is experiencing vision loss- these are the things that ground us and solidify our connections with each other and form our sense of self.

How have you morphed traditions in your home to include family with vision loss?

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Madeline Spencer Madeline Spencer

Blinded Veterans

Before moving to Florida, I finished up my degree through Northern Illinois University. Part of my degree required two internships, and I completed both of them at Hines VA Hospital Blind Rehab Center.

Hines VA Hospital is a very important place historically in the field of Blind Rehab, and I was honored to be an intern! Hines is the birthplace of the modern Orientation and Mobility training. It was also a primary place of advocacy for blind veterans after World War II, a time where services were few. Check it out here.

Today, veterans can receive services through your nearest Blind Rehab Center, there are 11 nationwide. Veterans get training in mobility, technology, low vision, recreation, independent living, and of course they get their training among other veterans.

As a mom and wife in a military family, I often reflect on the sacrifice service members make. Modern service members often incur issues with hearing, joints, lungs, back, and other physical disabilities. These show up quickly as a direct result. Vision loss can be a slow degenerative process, and many clients I’ve worked with in the past chalk it up to age, and don’t seek services through the VA.

I encourage veterans with vision loss to connect with Blind Rehab Centers to get comprehensive services, as well as any technological items they may need. Unfortunately civilians receiving services through the state won’t be offered phones, computers, or magnification devices. However, Blind Rehab Centers are an amazing resource for these items, as well as the training to use them at no cost!

If you’re a veteran and looking for more information visit here: https://www.prosthetics.va.gov/blindrehab/index.asp

For services contact your closest VIST (Visual Impairment Services Team) Coordinator here: https://www.prosthetics.va.gov/blindrehab/VIST_Coordinators.asp

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Madeline Spencer Madeline Spencer

Happy White Cane Day

Why do we celebrate White Cane Day? Maybe celebrate isn’t the right word, it’s more bringing an invisible and often ignored community to the forefront.

Often when people experience vision loss they tuck away in their comfortable environment. It might be as limited as staying behind their front door.

Orientation and Mobility, and use of a white cane, is basically exposure therapy to the world outside the front door. It’s navigating using senses other than eyes to maneuver in spaces you used to be completely comfortable in. Orientation and Mobility isn’t meant to teach you every route you’ll ever take, instead it’s meant to expose you to a variety of situations so when you encounter similar ones in the future you can confidently problem solve.

It’s not, “how do I cross these specific intersections.” It’s “what information do I need to cross (or not cross) any intersection"?”

By the time you’ve completed training you have faced so many fears and placed yourself outside of your comfort zone, but usually it’s alone or one-on-one with an instructor.

White Cane Day is a day to congregate in public spaces with white canes. In Bradenton they meet at the courthouse and walk down main street, then to the riverwalk, ending at a restaurant.

People with vision loss are important to our society. They can effect how our streets are built and maintained, how our transit runs, and where funding is allocated for which services. The caviat is, they have to show up, and White Cane Day is a great way to amplify these voices.

Happy White Cane Day!

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Madeline Spencer Madeline Spencer

Mobility in the Eye of The Storm

Do you have a plan during catastrophic events like hurricanes? This week may serve as your wakeup call to put something in place. If you’re experiencing vision loss there are services built into county services that exist for you!

Manatee County offers shelters, and for those who need it, door to door service to these shelters. Just like anything else you can’t wait until the last minute. Consider registering on the Special Needs Register before you need it here: Special Needs Registry Manatee County

Who is appropriate to register? I think better to be registered than not! They will also do phone calls to check in as well as provide important information regarding the storm. Plus it doesn’t cost you anything out of pocket.

If your emergency plan is always relying 100% on others for transportation please consider this option, and consider it a contingency plan!

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